Some terminology you might find useful – technical first, then the jargon i’ve come up with to make sense of things after
Hyperalgesia – an increased response to a painful stimulus, beyond what is considered ‘normal’ levels of pain
Allodynia – a painful autonomic reponse to a non-painful stimulus
Hyperalgesia and Allodynia are often confused, and easily confusible (especially to foggy brains) this article on hyperalgesia & Allodynia helps clear up the differences
Misophonia - a heightened sensitivity to sound, not related to the aural cavity. its thought to be caused by abnormally strong connections between the autonomic and limbic systems in the brain. follow the link for more info.
- spoonie – this word refers to an absolutely brilliant article, ‘The Spoon Theory’, written by Christine Miserandino. the link is here , and i really suggest you read it – anyone who has chronic pain, or a chronic condition will understand it instantly, and its a great way to demonstrate to people & skeptics why you have such limited energy & how you have to think when you do. for those who are friends and/or family, please read this. it is the best illustration of trying to function with limited, unpredictable energy resources i’ve ever found. just please be aware – ‘i have no spoons’ will become part of your vocabulary
- furniture walking – this is a method of walking while not being incredibly steady on your feet, where you judge your path based on where things are you can support yourself on. watch for hands trailing against walls and a lunge at the nearest piece of furniture, followed by the next after a brief recovery period.
- body drunk – i dont drink much. its not the best thing to mix alcohol with a cocktail of drugs, and it also tends to put me to sleep, which makes having fun a lot harder. plus i get the hangover thing every morning whether i drink or not, so
- thing – an immensely useful word when your brain is not being helpful. can apply to pretty much anything, e.g. “Remember the thing when that guy had that thing in his hair & you had to use the.. thing?” Can be confusing.
- brainfog/mindfog/foggy – imagine theres a store of informatino you know is there, but theres a giant wall of fog between you and it, and you’re reaching through fog to try and grab the right thing when you cant see what you’re grabbing. everything seems oddly distant, an
- AWAP – as well as possible. useful in cases where people know you’re not well but dont understand why or that its an ongoing thing – when they ask how you are, you’re AWAP. Also useful for friends and family members, instead of the ‘hope you’re well’ or similar comments, they can now hope youre AWAP – which is probably closer to how you’ll be feeling
- ChronicBabe or ChronicDude – if you hear someone use this phrase, chances are they’ve gone to Chronicbabes.com. used to describe someone with a chronic illness who still wants to be, well, a babe occasionally – wear nice clothes, go to the movies, get their nails done, get checked out – and not by a doctor. someone living with and despite their illness, and getting as much out of life as they can, as well as being… well.. Chronic
there will be more – just cant remember them at the moment! email me if any come to mind ;)