To most people, the world of chronic pain is a mystery. this is not helped by the obscure terms that get thrown around, like ‘spoonie’, ‘furniturewalking’ and ‘foggy’; let alone the attempt to describe an entirely subjective experience without enough words when asked ‘where does it hurt?’

So i’ve created a glossary of some terms you might encounter, and ways to understand some of them more fully, if i’ve left any out, or you have some that i dont please email me!

Plus a few other links & bits of pieces you might find useful - information on chronic pain, fun sites that help see the bright side (its sick person humour but it is hillariously funny), sites from fibrosurvivors, ChronicBabes and various other people who have helped me, knowingly or otherwise. hopefully it’ll keep growing the more i remember!